colonoscopy very painful and distressing

I had a colonoscopy yesterday by Nurse Practitioners. It was extremely painful and the sedation I was given woefully inadequate. I have no complaint about the competence of the practitioners nor indeed the care I received but in this day and age nobody should have to suffer high levels of pain during an invasive investigation as colonoscopy is. I was completely awake and alert throughout and had, apparently the maximum sedation dose permitted. It was no way enough. 

I had a colonoscopy 10 years ago. It was done under deep sedation by a colo rectal surgeon. I had no pain and was asleep throughout. 

This clearly needs to be addressed. I am guessing that nurses are not allowed to administer more than a certain amount of sedation/analgesia as there is no anaethetist present to intubate etc. I was told that deep sedation is a risk as,if the patient is unconscious, they are unable to cooperate/expressdiscomfort and that increases the risk of perforation etc.

This is not fair on the patient. I had 5 polyps removed which means I will be recalled next year for a further colonoscopy. I will refuse this unless I can be assured of adequate sedation.

Parents
  • Hello and thank you for your post,

    I am sorry that your experience of having a colonoscopy www.cancerresearchuk.org/.../colonoscopy  was so painful and distressing.  

    It looks like you are on a screening programme for bowel cancer so having a colonoscopy is important for you to look for polyps and signs of cancer. 

    While for many people having the colonoscopy is at worse uncomfortable for a number of people they can find it painful and possibly distressing. Sedation with oral medication can be given before the procedure. Sometimes intravenous sedatives can be used, but you would need to check if this was available to you. This could make some people very sleepy while the procedure is carried out. Breathing in Gas and Air can help in combination with sedation if it is needed. I am not sure if it possible for any adult to have this done under a general anaesthetic, which would need to take place in a hospital operating theatre with an anaesthetist. 

    The CT Colonography https://www.cancerresearchuk.org/about-cancer/bowel-cancer/getting-diagnosed/tests/ct-colonography that Dor06 mentions is sometimes an alternative to having the colonoscopy for some people, but might not be a appropriate scan for you. This is because you have a history of bowel polyps and this procedure cannot take them away so you may still need to have a colonoscopy. However, do ask your team about it.

    Before your next colonoscopy is due talk with the team that will carry this out, remind them what happened and ask what can be done to help you have one with less pain and distress. 

    You may have already done this but do try mind over matter. Take music or something to listen to that can keep your mind away from what is happening. Also try to take slower, deeper breaths to help. Being as relaxed as you can ensures the test can be done more easily and quicker. 

    I hope this has been of some help and that you will be okay.

    Take care

    Caroline

Reply
  • Hello and thank you for your post,

    I am sorry that your experience of having a colonoscopy www.cancerresearchuk.org/.../colonoscopy  was so painful and distressing.  

    It looks like you are on a screening programme for bowel cancer so having a colonoscopy is important for you to look for polyps and signs of cancer. 

    While for many people having the colonoscopy is at worse uncomfortable for a number of people they can find it painful and possibly distressing. Sedation with oral medication can be given before the procedure. Sometimes intravenous sedatives can be used, but you would need to check if this was available to you. This could make some people very sleepy while the procedure is carried out. Breathing in Gas and Air can help in combination with sedation if it is needed. I am not sure if it possible for any adult to have this done under a general anaesthetic, which would need to take place in a hospital operating theatre with an anaesthetist. 

    The CT Colonography https://www.cancerresearchuk.org/about-cancer/bowel-cancer/getting-diagnosed/tests/ct-colonography that Dor06 mentions is sometimes an alternative to having the colonoscopy for some people, but might not be a appropriate scan for you. This is because you have a history of bowel polyps and this procedure cannot take them away so you may still need to have a colonoscopy. However, do ask your team about it.

    Before your next colonoscopy is due talk with the team that will carry this out, remind them what happened and ask what can be done to help you have one with less pain and distress. 

    You may have already done this but do try mind over matter. Take music or something to listen to that can keep your mind away from what is happening. Also try to take slower, deeper breaths to help. Being as relaxed as you can ensures the test can be done more easily and quicker. 

    I hope this has been of some help and that you will be okay.

    Take care

    Caroline

Children
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