Tamoxifen

Good morning 

I am considering stopping Tamoxifen because of the side effects. I just don't think its worth it. Surely quality of life comes into account.

I called the BCN yesterday and it seems they can't be bothered anymore and told me to speak to my GP. 

 

Literally since I started it on August 18th 2021 my hips and knees have hurt  my shoulder have ached, my fingers are like sausages and it hurts to move them. I've become emotional and feel like.crying all the time. Prior to tamoxifen I didn't cry at anything, I have always been a strong person. Even typing this is hurting my fingers.

Is there an alternative without all these side effects.

  • Hello and thanks for posting,

    I am sorry to hear that you are experiencing side effects from Tamoxifen. You could probably benefit from speaking to your GP, and/or your hospital consultant.

    They will need to assess you, in regards to other possible options. Patients' have reported that sometimes changing the usual brand dispensed, or taking it in divided doses, can help with side effects. 

    I hope that you get help with this soon,

    Best wishes,

    Vanda

  • Hi Vanda

    Thank you for your reply. 

    I am waiting for my GP to get in touch so I can discuss. 

    I just don't feel my quality of life is great right now since starting the tamoxifen. I have a review with my oncologist in October but don't think I can wait that long.