Hi, thanks for responding quickly.I'm recovering well, except belly button is taking a while to heal up.I have found that my Nurse hasn't been that helpful, one time she told me not to worry about the MRI appointment when they must have already known I had cancer.However I will phone her today as you suggest because the way I was told about being referred on could mean anything.Thanks so much for talking to me and I will let you know what happens xxx

Thank you Claire, Amanda x

Hi Claire, I phoned my CNS and left a message.I was so glad I took your advice as a different nurse phoned me back and reassured me that I was still graded at 1b.They had discussed me at their meeting and it looks like I will have some radiotherapy so I will be referred onto a different person who then should see me for all my follow ups.Even though I know I have to have radiotherapy I was so relieved to hear my grading wasn't any higher and my washings had come back clear, so thank you so much for that advice. Amanda xx

Hi Amanda, I was just thinking about you and wondered how you got on on Friday ? Claire x

Hi Amanda, somehow I missed this post, so glad it is still 1b, and you know the plan. Hope you are ok claire x

Hi Claire,

thanks It went well and I was referred onto an oncologist and got a fast appointment where I went today! I'm grade 1b she said the mass was quite big 3cms but it was all contained within the uterus.I also was very relieved to find out that the brachytherapy that is being offered to me has very little side effects.( I had been googling it and reading the worst stuff and getting worried)With this treatment (I only need 3) there is just a 1% chance of it returning.How are you ? What further treatment will you have ? Thanks for your help 

Amanda xx

Hi Amanda. It's a different world isn't it when we are relieved it's only 3 treatments etc, but then we've both read what the alternatives could be! Mine is a rare cancer, a sarcoma, which is not really very responsive to chemo or radiotherapy. The tumour was about 8cm but still 1b, because it was a sarcoma I'm not having more treatment but have at least a 50% chance of it returning and often later ie in 10 years plus, so I've got to be vigilant all the time, so I'm still trying to work out how to be that without being anxious all the time. I've recovered well from the surgery but am getting quite bad menopausal symptoms, I need to watch what I take as the sarcoma is hormone sensitive so oestrogen and progesterone could cause it to recur ( it might be worth asking your oncologist if yours is hormone sensitive as I have been advised not to take the menopace supplements as this could stimulate the sarcoma because it is hormone sensitive ). It's all a bit of a mine field. I'm glad it's only 3 treatments then hopefully ok, it's all a very undignified process though isn't it, one to grin and bear and just remember they've seen it all before. Do keep in touch and let me know how you are getting on . I'll be thinking of you Claire xx

Hi Claire, that is a worry for you.Hopefully you will be given regular scans.I'm already thinking of paying privately in the years to come when scans are not offered to me.(if I can afford it ).When people talked about their 'cancer journey'I never really understood that phrase, well now I certainly do ! Things are always changing and the worry changes too.I've been through the menopause so it's not that bad for me.I never took any HRT and a friend once warned me off taking any' natural supplements'.I do hope you get the help you need and it's easy to say don't worry but perhaps there is help for that too?take care and keep in touch.Amanda xx

Hi Amanda

i was just thinking of you and wondering how your brachytherapy went ? Hope you are ok.

claire x