Displaying symptoms of a brain tumor but nothing will help.

It started on Saturday when I got out of the shower. I had kaleidoscope vision in my right eye followed by a dull headache. The vision corrected itself after 30 minutes but the headache stayed and still have it. It gets worse everyday. I went to A&E on monday. Saw a triage nurse who gave me a appt card for an out of hrs appt at the hospital for 5.30. He said it's a bit of a wait. I knew what time I went down to A&E but for some reason I read my time wrong. I arrived at the out of hrs appt only to be told I was 2 hrs early. I was so shocked at myself that I didn't read the time on my phone properly and it scared me. Anyway they sent me away with imgrane pain killers which treats migraines and co-codamol. I took the medication straight away but it was not effective at all. I went to bed that night with the headache, it wakes me in the middle of the night and wakes me up in the morning. I woke up with a stiff neck one morning too. Yesterday I started having nausea with the headache by the evening I couldn't take it anyway more so I rang 111 for the third time. They got me a out of hrs app at the hospital again. And this time dispose there being more symptoms they said it may be tension headaches and gave me a pain killer amitriptyline to take before bed. Took before bed made me little drowsy but didn't take the pain away and woke up to the same headache still there. This morning I had a docs appt I had booked and told him everything since Saturday and he said he still thinks it's a migraine and gave me some mouth dissolvable tabs for the sickness and 2 nostril does of migraine painkillers. Took them straight way. The anti sickness tabs did help ease the nausea and used both the nasel pain killer sprays and they had no effect. He decided to book me for a blood test to check arteries in my head. I wanted to request for a ct scan or an mri scan as that would give a better look as what's going on as nothing is taking this pain away but everyone I see tends to pin it on something else. Stress, your too worried and that makes the headache stay. I'm also worried as I have a sister who has had 4 brain tumors and as we are so used to seeing her sympoms everytime they grow back, when this headache stayed and no pain killer is working and everyday they kept getting worse I just want a doctor to refer me to get a ct or mri scan doney to rule out anything bad. So I'm no closer to being pain free, I'm a fulltme mum of 3 so I feel guilty for resting in a dark room as I'm sensitive to light loud noises while my eldest daughter helps me take care of them, I feel I'm failing them while I'm trying everything I can do to get better. The doctor is ringing me on monday to see how I am. I guess until then I just have to put up with the pain. But feels like torture. Don't know why they don't just have me get a ct or mri done to have a look as nothing else is working. Something is going on and feel like I'm not being listened to. 

  • Hello Alison

    Thanks for getting back and updating us about your daughter's situation. I can appreciate you being worried but hopefully these tests will be done soon to find out what the matter might be.

    It is good to hear she has been assessed by her doctor and they are taking this seriously by arranging some blood tests and an MRI scan just to rule things out and stay on the side of caution.

    It is unlikely that a full blood test for a year ago would have picked up something abnormal especially as these symptoms only started a few months ago. The blood tests the doctor has now arranged may include a variety of tests which may include checking different hormone and chemical markers in the blood that can be affected when unusual activity is happening in the body.

    There still is a good chance that whatever is causing the headaches isn't anything serious. Easier said than done ( I know) but try not to over think things for now and take each step as it comes.

    I hope you know more soon but please get back if you need to, alternatively you are welcome to give one of the nurses a call on 0808 800 4040 if you wish to talk things through.

    All the best

    Naomi

  • Hiya. 
    I'm sorry to have read this Ive been experiencing the exact same symptoms for about 6 month I'm wondering if you have got any futher with your doctors?

    I hope you feel better x

  • Hello there

    I am sorry to hear you have been experiencing some symptoms that are worrying you.

    I'm afraid no one on here can tell you what the matter is and it is likely that other people's stories will also vary.

    We suggest that people go back and see their doctor if symptoms are persisting so they can assess you. If needed they can also arrange further tests.

    Unfortunately sometimes it can take a while to get answers and there are occasions when the cause can't be found. Do remember most symptoms won't be linked to cancer so there is a good chance something far less serious is going on.

    I hope you feel better soon.

    Take care

    Naomi

  • Hi Alison,

    Just saw your messages on this thread and am wondering how your daughters MRI went? I am 22 and am also having many symptoms :(

    Z x 

  • Hi Z

    Many thanks for your message. My daughters bloods all came back ok. She's not managed to have an MRI yet as she's got an earring in the top part of her ear that she's not able to remove until the salons re open,,  and they can't do it until it's removed. Her headaches have got a little less I'm glad to say. Her opticians have also checked her eyes in December and they said everything was ok. So we're just waiting for the salons to re open. There are no certain patterns to her headaches they just come on any time. Hope that helps,, have to been to see your doctor. Xx

  • Thanks for your reply Alison! 
     

    I'm glad to hear her bloods have come back okay! I have actually been to the doctors, went to A&E yesterday due to some double vision and was having massive anxiety over it but the doctor said it was fine. Although I am not able to take his word for it as felt he was slightly dismissive and no tests were done (which is a shame since I went A&E). I have also been opticians recently (2 weeks ago) which came back fine but I have new onset double vision which is scaring me :(( will book an appt with my new GP and push for an MRI 

    Z :) 

  • Hi Z,

    it's good news your optician test was ok , I've looked into the tests they're able to see a great deal,, I'd definitely push your doctors,, I'm sure you'll be ok but it would be peace of mind as I know how worrying this can be,, and if you're anything like me Google hasn't helped.

    let me know how you get on Z

    best wishes

    alison

  • Hello! 
     

    Sorry to open the post up but was reading through this discussion as I've been worried about my own symptoms too. I've been having very bad headaches for about 3/4 months now and it's getting to the point where they are daily. They are so painful in the morning and evening and are making me feel very sick and dizzy. I told my GP who luckily referred me to a neurologist and he called me today and has referred me for an MRI scan.

    I'm just worried as I've been prescribed sumatriptan which didn't help which is for migraines and no other tablet helps at all. I've been getting tingling feelings in my legs and feet this week too. Just really worried, I'm only 22 years old.

    Did you get anywhere with your doctor and were you able to get a scan booked in? 
     

    x

  • Hi Lydia

    many thanks for your message. I'm sorry to hear you're suffering similar symptoms to my daughter. May I ask where your headaches are, forehead or back of your head? My daughters headaches have reduced in regularity and degree of pain. She did have an appointment for an MRI but chose not to attend,, which I didn't agree with. It's good that doctor has referred you for an MRI. Have you had any blood tests and have you had a recent eye test as these 2 things can hopefully also pick up anything sinister. 
    kind regards 

    Alison 

  • Hi Alison,

    Thank you for the reply!

    Thanks, I honestly wouldn't wish the pain upon my worst enemy, never felt anything like it. I'm glad that her headaches are becoming less regular and painful, that's a good sign definitely. Of course, my headaches are always on the top right hand side on my head, they're actually above my forehead on the top of my head. It's always in the same place but the pain does also go all over the right hand side but the top part is the main point of pain. I never get them in the left side at all. 
     

    Was there a reason she didn't attend? It can be quite scary having to go for one so I can understand, but if her headaches are reducing in pain and regularity then I think that's definitely a good sign. I haven't had any blood tests at all and they haven't mentioned about me having one actually, I wonder if they'll give me one when I go for my MRI? I've had my eyes tested and my vision is fine. They've done an urgent 2 weeks referral for my scan so I'm glad that I don't have to wait as I spend majority of my time googling things which I shouldn't do. But the tingling in my legs only started this week and it's becoming very regular. My doctor has asked me to cut out milk, cheese, alcohol, fizzy drinks and caffeine till I have my scan as these are migraine triggers and if I notice a decrease in my headaches then that's a good sign as it could be migraines. Do you think I should ask for a blood test too? 
     

    Best wishes, Lydia x