Recurrence of head and neck cancer

July

I had an mri scan without contrast and the radiologists report said some concern re my lymph nodes under chin 

Aug

had mri scan with contrast and told by oncologist all clear - go enjoy yourself and have fun 

Sep 

oncologist rang to say 2 different opinions from radiologists so now need a pet/ct scan 

Oct 

Still waiting results 

Nov 

appt with oncologist 

Ongoing waiting is hell 

Parents
  • Hello and thanks for posting

    I'm sorry to read about all you’ve been through and can appreciate that waiting for scan results can prey on your mind. Many people find this period of uncertainty the hardest part, as it can feel as though everything is on hold and out of their control. It is therefore not surprising that you are feeling worried.

    Having a PET/CT scan does not mean a recurrence has been found, it just means as there were different opinions about the MRI findings, your oncologist wanted more information before reaching a conclusion.

    I know it’s easier said than done but try and take it one step at a time until you know more. Some people find talking it through with family and friends and keeping busy can sometimes help. 

    I hope you know more soon. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

Reply
  • Hello and thanks for posting

    I'm sorry to read about all you’ve been through and can appreciate that waiting for scan results can prey on your mind. Many people find this period of uncertainty the hardest part, as it can feel as though everything is on hold and out of their control. It is therefore not surprising that you are feeling worried.

    Having a PET/CT scan does not mean a recurrence has been found, it just means as there were different opinions about the MRI findings, your oncologist wanted more information before reaching a conclusion.

    I know it’s easier said than done but try and take it one step at a time until you know more. Some people find talking it through with family and friends and keeping busy can sometimes help. 

    I hope you know more soon. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

Children