Hello and thanks for posting

I’m sorry to read about what's been happening and can appreciate this must be a worrying time for you.

Some people can have ongoing breathlessness for weeks or even a few months after a severe reaction to oxaliplatin, especially if the reaction affected the airways. Serious lung damage from this drug is rare and usually shows up on a CT scan, which makes your normal CT scan encouraging.

Oxaliplatin reactions can occasionally affect the heart, which is why the echocardiogram has been requested, although a normal ECG is reassuring.

Many people improve gradually once oxaliplatin is stopped, but recovery times vary considerably depending on the underlying cause. I’m not sure if your specialist team has referred you to a respiratory specialist or recommend you have breathing tests. If they haven’t, do ask them if this is appropriate for you.

You have posted on the ask the nurses section of the forum and you're asking for other users experience who may be going through something similar. Anyone is welcome to reply on here but you may get more response from others who may be or have gone through similar by posting in a different section of the forum as well as here.

You may also find it helpful to know that Bowel Cancer UK have an online forum and you may find it helpful talking to other people going through similar things and hear about their different experiences.

I hope things improve for you soon. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Kind regards,

Celene