Myeloma watch and wait

I was diagnosed with asymptomatic multiple myeloma in Feb 2020,my bloods have been fairly stable since then and I was having 3--4 monthly bloodtests,this year I have only had 2 bloodtests would there be a reason why the frequency of bloodtests have changed.

  • Hello and thanks for your enquiry,

    When you are first diagnosed with asymptomatic multiple myeloma (also called smouldering myeloma), doctors monitor you closely—usually every 3 to 4 months—to establish how quickly or slowly your protein levels are changing. However, clinical guidelines (such as the UK's National Institute for Health and Care Excellence, or NICE Guidelines) note that if a patient's numbers remain stable for five years or more, the frequency of monitoring can safely be reduced.

    NICE guidance states: Monitor smouldering myeloma every 3 months for the first 5 years, and then decide the frequency of further monitoring based on the long term stability of the disease.

    Because you have maintained stable bloods since February 2020, your healthcare team has likely determined it is safe to space your tests out to every 6 months.

    Do check this with your hospital team if you would like confirmation.

    I hope that this helps,

    Best wishes,

    Vanda