Hi All

I lost my wife on the 17th of March this year to the above, it has taken me 5 months to finally get her cremated due to having to have a post mortem.

When we spoke to the cancer specialist about taking both chemotherapy and immunotherapy NO ONE ever mentioned The above!

I know that it is extremely rare [ below 1%] but that is still somebody’s loved one that will get it, with the chances of dying between 38 to 60%. I just do not understand that on websites like this on [and Roy castle website] there is no mention of it.

Would we have changed our minds to her having Pembrolizumab I do not know as we never got told about.

So please people if you are having Pembrolizumab or any other immunotherapy drug check it out before it’s to later.

I still have no answers from anyone and I wait for the coroner to come back with a report or an inquest.

Carol and I were married for over 39 years and to not have her is something I am having trouble coping with, I go to bed every night hoping that I do not wake up and curse the day that I have.

Please people check the symptoms:

Heart Symptoms (Myocarditis)

• Chest pain

• Shortness of breath

• Fast or irregular heartbeats

• Dizziness or swelling in the legs

Muscle Symptoms (Myositis)

• General body and muscle ache

• Weakness in the upper arms and legs

• Extreme tiredness

Nerve and Eye Symptoms (Myasthenia Gravis)

• Drooping eyelids (ptosis)

• Double vision

• Trouble swallowing or slurred speech

• Severe breathing trouble

Carol had the whole list but we had no idea what it was and I only found out after she had died.