DCIS and now a new problem

Hello 

This time last year i had blood leaking from my nipple, i went to my consultant and was told it was duct ectasia, we removed this through surgery and they tested the sample and it contained 8mm of DCIS. I had to have another operation on 31st December to have the nipple completely removed, all the further results showed that it was clear and gone, i didnt even need radiotherapy. Ever since then i have been a nervous panicky mess!! i check them every month after my period and have been back several times with 'whats this' issues and everytime its been fine. 

I checked them yesterday and discovered what felt like an oval bump in my 'good boob' and my lovely consultant said come in now and we can look at it, she did and said feels like a cyst but we get an ultrasound done just to be safe. During the ultrasound the person doing it checked the good boob and everything was very quick, he then moved onto the operated one and stayed a long time on one area, he then said i think we should biopsy these very small 6mm nodule. All was prepped ready to happen and then he checked again and said no i think its a harmless cyst as ive gone in closer and its now disappeared and spread out, so stopped the biopsy and suggested an MRI instead. 

After i picked myself off the floor and wiped my eyes i went back to the consultant who advised against an MRI and instead a second ultrasound. I should probably mention i had an ultrasound 8 weeks prior to this appointment on both breasts and that came back clear, but this was done at another hospital and couldn't be viewed. 

Im now waiting on the new ultrasound and im a mess with worry, are they doing another ultrasound because im anxious? what if they should have done a biopsy? im so confused and stressed about this. Im scared its one day going to come back bigger and badder and wipe me out and i cant sleep hardly eat and with two small children i dont want to live this way anymore. 

Has anyone had the same issues im trying to think that 8 weeks ago all was fine and holding onto that, im also holding onto the fact if he had looked more closely to start a biopsy may never have been mentioned and i would have got the all clear and no follow up, are they doing it just to stop my brain going wild or do they think its worth double checking - so many confusing worrying questions 

  • Hi EF 1985 and thank you for your post.

    I’m sorry to hear about what you’ve been through.

    Finding DCIS after what was thought to be duct ectasia must have been a shock. It's completely understandable that you're feeling anxious.

    It sounds reassuring that the doctor looked more closely at the area and decided it looked like a harmless cyst rather than going ahead with the biopsy.

    If they had thought it looked suspicious, they would usually have gone ahead with the biopsy there and then. 

    It is also reassuring that the ultrasound on both breasts only 8 weeks ago was clear.

    Asking for a second ultrasound doesn't necessarily mean they think it's cancer. It may simply be that they want to double-check and be certain that it is not cancer.

    Many people who have had DCIS or breast cancer find that the fear of it coming back can be as difficult as the treatment itself.

    Maggie's has a webpage with useful tips and advice on how to manage the fear of cancer returning.

    If you have not yet sought counselling, perhaps you could consult your GP to see if this might be beneficial.

    Waiting for scans and results can be very stressful. In the meantime, try to get on with your life and occupy yourself with your children and family.

    Please get back to us if you need any more information or support.

    It might help to talk things through with one of our nurses on the helpline. You can call for free on 0808 800 4040, Monday to Friday, 9am to 5pm.

    I really hope you know more soon and that everything will be okay for you.

    Kind regards,

    Tina