Problem with reducing steroids

My husband has been on steroids (Dexamethasone, Prednisolone) for 3½ years to accompany various treatments for prostate cancer.  He has now been told that he no longer needs them and to taper off over the next 5 weeks. 

As instructed, last week he reduced the dose from 10 mg to 5 mg, once daily.  This week he was supposed to take a 5 mg every other day.  This he did and then the withdrawal symptoms kicked in quite quickly:  constant fatigue, weakness, joint pain, lack of appetite and nausea.  He’s hardly eaten anything all week (although I realise the high temperature isn’t helping his appetite).  

He is insistent that the consultant knows what he is doing and is refusing to get a second opinion.  Even so, he has begun to feel that the  tapering off schedule seems rather quick and, although he was due to take 5 mg every 3 days next week (and so on, until just 5mg a week), he’s gone back to 5 mg daily for now as he’s been feeling so rough.  So far, his BP is normal and he hasn’t experienced any other symptoms in the list, either physical or mental. 

We’re not sure now how to proceed and he isn’t due to see  his consultant again for another three weeks.  Any advice and guidance would be greatly appreciated. 

  • Hi there and thanks for the post

    I'm sorry to hear how your husband is feeling since tapering his steroids further, it is best he speaks to his doctor about how this is affecting him so they can advise him further.

    The doctor will guide the best way of tapering the steroids according to the individual patients situation and the reason and the duration they have been taking the steroids.

    As you say the recent heat we have been experiencing may not have helped with the symptoms and this may improve now the temperature has dropped.

    I hope your husband starts to feel better very soon. Do get back if you have further questions or of you prefer give us a call on 0808 800 4040, we're here weekdays 9-5.

    Best wishes to you both

    Naomi