Swelling palate

My palate has been swelling up for a year and a half into hard smooth painful growing lumps and I feel so unwell no appetite sweating 

The roof of my mouth is hurting and sometimes just a dull ache 

I had bowel cancer and was treated in 2023 I felt well for around 7 months then started to get ill again

Mri scan on 15th may reported as normal but palate still swelling up 

Doctor said no more tests but I'm not happy 

  • My next appointment with GP is on the 25th of June 

    I've been referred to maxillofacial appointment on the 7th July 

    The mri scan is being reviewed again 

  • Hi Micchelleandrea and thank you for posting again.

    I’m really sorry you are feeling so worried.

    It makes sense that reading something like that has scared you.

    The article you found is about a very rare case.

    It is not something that happens often.

    Most people with symptoms like yours do not have this.

    Having the same symptoms does not mean you have the same illness.

    Many common and less serious conditions can cause similar symptoms.

    It’s also important to remember that doctors do not make a diagnosis from symptoms alone.

    They look at scans, tests, and your full history to understand what is going on.

    If you are worried, the best thing to do is speak to your doctor or nurse.

    You can show them the article if it helps, and they can explain what applies to you and what does not.

    I'm not sure if you have any support at home. Someone you can talk to and relay your fears to. If not

    maybe you could join a support group near you.

    I hope you get some reassurance soon

    Kind regards

    Tina

  • Im so unwell palate has swollen right up im getting deep bone pain in the roof of my mouth and forearms and hips sweating profusely constipated lethargic no appetite 

    I do have support 

  • Hi Michelleandrea, 

    I am so sorry to hear you are feeling so unwell and the palate has swollen, you are in great pain and feeling lethargic. As it's the weekend, our nurses won't reply straight away but I would strongly advise you ring 111 for out of hours medical advice. It sounds like this needs looking into especially as your palate is swollen and you are not feeling well so do ring 111 and try and talk to a doctor if you can over the weekend. 

    I hope that things improve for you quickly and that you feel better soon. 

    Best wishes, 

    Lucie, Cancer Chat Moderator 


  • I had a ct scan thorax abdomen pelvis on the 19th of may which has been reported normal ive aske patient support to review it along with the mri neck scan
    I've been getting alot of groin pain have lumps inside my vagina and my urethra has swollen and moved out of place and gone inside me there's also swelling on my perineum and a lump just inside my anus
    I've also got alot of pain inside my lungs particularly the right hand side i find it difficult to breathe when the pain starts
    I I have a swollen palate which has growing smooth very hard painful lumps behind my teeth and in the middle of palate my throat is sore and swollen 
    All this started in 2024, I felt really well for around seven months after chemotherapy then I started to get ill again 
    Im sweating profusely, constipated no appetite and feel exactly the same way as I did when I had cancer before except now my whole body is in pain I feel so unwell now
  • Hello Michelleandrea,

    I can see that you are still worried about your symptoms. You have sent many posts about this, so I am concerned that you are not getting the support you need.

    You do need to see your GP or hospital doctor about the symptoms you have and the worry they are causing you. They would want to know about them. The nurses here do not work at a hospital or a GP practice, so they are not able to tell you what is causing them. They will not be responding to any more posts about them.

    As you seem very anxious about this, it may be that you have already accessed some help with your current mental health. You may also want to contact MIND 0300 123 3393 to talk about the anxiety this is causing you. I hope you can get the support you need soon.

    Take care,

    Caroline 

  • I saw my mental health care coordinator this morning