Side effects from Cisplatin and etopiside

Hi i had my second of 6 cycles last tuesday and ive had the most dreadful bout of constipation. I managed to go after 5 days and i am now on a course of laxidos to help going forward. They reduced my dose to 80% this time and i habe not experienced tinnitus or vertigo as i did on first session. Ive lost nearly all of my hair too. 

I feel so down all the time is it normal. I had about 20 side effects last time this time its been lukd i say the constipation. Dreadful heartburn yesterday and a bit of neuropathy on the front of my hand. 

I am fearful of germs and catching infections but i cant lock myself away as thats no good for my mental health how do you recommend i try to manage or cope with this fear. Am i only one like this. I try to stay so positive. Any advice you could offer would be amazing. 

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  • Heya.

    Welcome to the forums in order to start with. Regarding the prescribed medicines talk to your specialist in question here. He or she will be able to give you up to date information. Best wishes. I’m sorry to read about your reactions to the medicines and thank you for the post too. Keep in contact with your friends  

    Let us know what the team say. It is a good idea to maintain a balanced healthy diet so drink water and have good food as well. Make sure you have a decent amount of sleep each night in addition. That is so important. Try to fit in light exercise each day if you can do so. There are so many different good apps for fitness. Find a hobby. 

    MacMillan have excellent information. Card games are a way to keep your brain healthy. Carers UK run an online activity programme called Share and Learn each week. Take a look at their website. Alternatively see if your library have group activities. Art helped me when I was unwell in the hospital in between chemo doses each week. So did half a hour each day of very light exercise. 

    Never skip a dose of medicine. Follow instructions carefully. Ask the hospital physio about moving and light intensity exercise. If you don’t feel well enough ask your friends to postpone or meet them inside the hospital instead. If this is possible ask them to visit you at the hospital. Or talk to them on Facebook. There are online support networks available these days. Many charities run online support groups for current patients. Look into them. 

    Keep us posted. You can do this. 

  • Thank you vety much for your reply. Ive spoken to so many people since the start of my journey and its reassuring to speak to someone who truly understands. 

    Side effects are horrendous but hopefully worth it in the end. 

    Amandas

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