Effects of treatment - distended stomach

Hi - I'm new to the forum. Some backgound -

  • My dad is living with bowel cancer which has metastasised (has been for a few years now)
  • He's on a regular chemo plan (once every two weeks and leaves with a pump) as main treatment - all as an outpatient 
  • He's had to be quite sedentary for a few months whilst a cut on his heel which got infected improved - so he's lost a lot of muscle mass / energy from being sedentary 
  • He's recently had to start getting regular magnesium infusions which is giving a lot of undesirable side effects (as far as I understand it - nausea, vomiting, diarrohoea etc)
  • He had to have a blood tranfusion the other week

He's recently been feeling really unwell from the side effects of chemo and wider medications recently - so his oncologist paused a treatment round to give his body a chance to rest and recover. Within these two weeks, he's started having more pain (seems like nerve pain) as well as being generally uncomfortable and how now been prescribed codeine to help manage this.  

I saw him yesterday and he looks the most sick I've ever seen him. He doesn't seem to be eating or drinking much water so his stomach was really bloated / distended. He's lost the energy to get out of bed / get off the sofa without physical help from my mum. He also seems to have more anxiety than he used to (e.g. panic attack over losing breath moving from sofa to bed) and general indicators of depression. 

They both seem a bit apprehensive about when they should be managing these symptons at home vs going into the hospital. He had a phone consultation with the oncologist last week which resulted in the codeine prescription but they said the consult felt rushed and the doctor was focused on the cancer markers as opposed to his current symptoms.

They have an in person oncologist appointment tomorrow - should I encourage them to get him admitted into hospital before then? I wonder if he needs a few days on an IV drip for hydrationa and a hospital monitoring his eating and bloating more closely. 

  • Hello Molly-IH and thanks for your post,

    I am sorry to hear about your dad and can imagine that this must be concerning for you all.

    Hopefully when your dad is assessed by the oncologist tomorrow they can review his symptoms and they may consider admitting him if he appears dehydrated and they want to assess his distended abdomen. The doctors will also take in to account what your dad wants.

    It would be helpful to make a list of symptoms that he is experiencing so the doctor has a full picture. It is also important to let his team know that he is struggling to cope at home.

    If he has a specialist nurse it might be helpful to ring today before his appointment to let them know that your dad is not coping. You would need to get your dad's permission in order to discuss his health.

    It may also be helpful for your dad to make an appointment with his GP perhaps sometime next week so he can see what help and support he can access at home once he has seen the oncologist and knows more about his situation.

    I do hope that the appointment goes well tomorrow and your dad is able to feel more comfortable. I know you said that the doctor appeared quite rushed on the phone and it maybe helpful to have a list of questions that hopefully you can tick off as they are being answered. Do make sure that your dad fully understands what the doctor is saying.

    If you would like to chat through any of this before or after his appointment then you are welcome to give us a ring.

    The number to call is Freephone 0808 800 4040 and the lines are open Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine