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Vomiting and diarrhoea weakness on lonsurf

mermaids
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It’s my 8th session on Avastin and Lonsurf which my oncologist said I’m doing well 

unfortunately this time I’ve only taken four pills and I’m feeling very poorly 

I’ve taken anti sick ondestron and domperidone but o vomited 

The intense weekness and fatigue as put me off my feet and I am struggling to eat or drink 

Is there anything else I can do before I give up ? 

regards Athena 

  • I'm sorry to hear how difficult things are for you at the moment Athena.

    I'm not sure if you're aware, but our cancer nurses don't work at the weekend but they will get back to you as soon as they can next week. 

    You can speak to one of our cancer nurses about this tomorrow on 0808 800 4040 from 9a.m onwards, but if you are hoping for some medical advice or input today we would recommend trying to get in touch with your medical team if you have any contact numbers for them, or the NHS on 111.

    I really do hope your appetite returns and the weakness and fatigue you're currently contending with becomes much more manageable soon.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hello Mermaids and thanks for your post,

    I am sorry to hear about your symptoms. You sound like you have tolerated them so well until now. As your symptoms are related to your treatment it is probably best to discuss this by ringing the chemo helpline. If you are suffering from weakness and fatigue the doctors may want to check your bloods and assess your general health.

    Do give the hospital a ring for advice.

    The doctors may want you to discontinue the medication until you have been assessed.

    If you are unable to contact your hospital for some reason then you could always ring 111 for advice.

    I do hope that you feel better soon.

    All the best,

    Catherine

  • Offline in reply to CRUK Nurse Catherine

    Thank you Catherine.

    I have spoken to my oncologist last week on my review I asked her to lower the dose which she did.

    But for some reason I’m not tolerating them and only managed 1day along with the initial Avastin infusion.

    I need to understand why would this happen and is there anything I can change or is it a case of do or die 

    Many regards Karen 

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