Onco Score before BRCA results

I had breast cancer diagnosed again at 49. First time at 32. These were separate cancers. First time I had surgery, chemo, radio, zoladex and tamoxifen. This time I had lumpectomy (tumor was 5.4cm). No lymph nodes involved, estrogen positive. Onco Score came back as 18 but this was before BRACA1 positive status results. I’m also on bone by phosphates and letrozole and had post surgery radio. If BRcA1 result was given at same time as ONCO Score, would I have been given chemo too, especially due to tumor size? Worried that they haven’t given systemic treatment. Especially as gene mutation and tumor size.

  • Hi SJ1976,

    I am sorry to hear that you are worried about not being given systemic treatment this time. Have you asked your care team about this? They are best placed to give you their reasons. I know how worrying a second breast cancer can be. I was diagnosed with one of the less aggressive types of breast cancer, 16 years ago and advised that it was slow growing and unlikely to reoccur. I had a lumpectomy, followed by Tamoxifen.

    Within 6 months I discovered a lump in the other breast, which was pre-cancerous. Within a year from the lumpectomy, I found a second cancer in the original breast and had a double mastectomy, followed by Letrozole for 6½ years. My bones were tested at the time and were fine, but I have just broken 4 metatarsal bones in my foot. These are the first bones that I have ever broken and I have been sent for another DXA scan next week. I sincerely hope that all goes well for you this time. Please keep in touch an let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx