My daughter is 19 years old, since the age of 12 she has had problems with stomach pain, this has progressed over the years and we can't get any answers.
One day she was standing brushing her teeth and blood ran down her leg, we went to A&E and they said they would send her for a colonoscopy which we had to book via the GP. We had to really push the GP to get this arranged and with luck the day they took her bloods she was having a "flare up" and it should her inflammation markers over 1,000. The colonoscopy came back clear. She's constantly pooing blood, and a lot of it, her hair is thinning and she is getting mouth ulcers as well as the pain in her stomach. The blood is now coming in clots, and when she farts blood is going down her leg. She's having to take a change of underwear with her to work these days. The GP told us that based on the colonoscopy results it looked like she had Crohn's disease but when we were sent back to the hospital we were told no she didn't and they thought it was down to diet and perhaps piles in her small bowel so she was sent for an MRI. Again this came back with no inflammatory bowel disease. She has been peeing herself at night sometimes and when she needs to pee it's urgent, what is going on?
We are really worried, no one seems interested because of her age and it's being put down to diet, this isn't diet, constantly pooing and farting blood is not diet, losing your hair and mouth ulcers is not diet, there is nothing wrong with her diet, we don't know what else to do, 7 years of this and things are worse than ever, we need to get to the bottom of this, I'm worried she has something serious, where can we go for help as the GP and hospital are of no help, as soon as a test comes back clear your off this list!
