Post mastectomy discomfort

I had great help and support leading up to my op from the breast cancer team but now the mastectomy operation is two weeks on and they have removed all the cancer I seem to be in limbo land. The MDTeam have decided on a preventative treatment with an estrogen inhibitor but I have no idea which one (I had bi lateral breast cancer 21 years ago and didn't do well on Arimidex and Tamoxefen) and they are also prescribing a bone strengthening tablet, but with no explanation as to why.

What I don't understand is if all my cancer has gone, then why the estrogen inhibitor and not any preventative measures for the triple negative cancer they also removed? Both tumours we're less than 12mm in size.

More importantly I am taking paracetamol and ibuprofen three times a day to stay on top of the pain and am concerned about how long I can continue that regimen without causing any backlash gut wise. The pain is debilitating and I get so very tired - is this normal after two weeks? Who do I go to now for guidance, is it my own Doctor?

  • Hi Vivaldi, and thank you for posting,

    I’m very sorry to hear that you’ve recently needed to have a mastectomy. I hope you’re beginning to recover. It’s quite common to have ongoing pain after breast surgery, and this can continue for some time. This can happen because nerves in the area may have been disturbed or damaged during surgery, and they often take a while to heal.

    If you’re able to, it’s worth speaking with your hospital team about the pain you’re experiencing, as they may be able to adjust your pain relief or suggest other ways of managing it. If contacting them is difficult, your GP can also help.

    I also wondered whether you have a breast specialist nurse you can speak to. They can help explain the MDT (multidisciplinary team) decision about your treatment and answer any questions about the plan going forward, as they will have access to all the details of your care.

    Bone-strengthening medication (bisphosphonates) is often used as part of breast cancer treatment. It helps protect the bones from thinning, a side effect of some treatments, and can also reduce the risk of the cancer coming back. I hope this information is helpful.

    If you have any further questions or would like to talk things through, please don’t hesitate to get in touch. You can call us on our freephone number 0808 800 4040, Monday to Friday, 9am–5pm

    Jemma

  • Thanks Jemma I have reached out to both my Macmillan nurse and my own Doctor. Thanks for explaining the bone strengthening medication, that was extremely helpful. My MDTeam are a mystery and I have no histological report following my breast removal so have requested that. I hope I can query these things when I see my Macmillan nurse next Tuesday.

    I was at a low point this morning, so really appreciate your kindness and support in your reply.

    Vivaldi