Hello Trev1234 and thanks for posting

I'm sorry to read about your wife's situation. This must be a difficult time for you both.

Steroids are often given to reduce swelling in the brain, keep symptoms like headaches, sickness, confusion, or weakness under control. They can sometimes help with appetite and improving energy. People can vary when they stop their steroids. There may not be much difference straightaway especially if the dose has already been reduced gradually. Over days or weeks, the swelling in the brain can increase again. This can cause symptoms such as fatigue and sleeping more, can increase weakness, confusion or changes in awareness, and people can become less interested in food and drink.

Your wife's doctors may restart or adjust some of her medications if her symptoms worsen. The focus at this stage is to try and improve her comfort

We have information on our website about support at home that may be useful.. Macmillan Cancer Support have information on looking after yourself and how to access support.

I’m not sure if your wife is being supported at home by a community palliative care team, often they are known as Macmillan nurses. They are experts in controlling cancer symptoms and can provide emotional support to you both. If she doesn't have a palliative care team involved in his care, she could ask his GP or hospital team to refer her.

I hope this is of some help at this difficult time. Give us a ring if you want to talk things over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Kind regards,

Celene