My mum has recently (8 weeks ago) been diagnosed with throat cancer stage 4. She has opted for palliative radiotherapy. She says she does not want to go through full curative treatment due to her age and other health conditions. I know she has made the right decision for her, and as difficult as it is, I do support her completely.
She has had 3 sessions and has 3 more. I know that its very hard to predict what will happen, but im really struggling with the not knowing.
She is struggling more with pain and swallowing over the last 2 weeks but is managing very well.
I feel like all the staff we meet are so kind and caring, but I do feel the service is quite uncoordinated.
I am worried about who will be co-ordinating her care after her last radiotherapy session. Who will we be expected to contact for help with symptom management, emotional and psychological support etc?
Who has the conversations with mum about CPR and end of life care/wishes?
I know palliative care will be needed, who makes that referral and when should it be made.
I know she doesnt want to die in a hospice or hospital, she wants to be at home. Will we have support in this?
Feel very overwhelmed and afraid at the moment.
