My husband was diagnosed with cholangiocarcinoma last October 2024. Subsequently further tests and scans show that the cancer has also spread to his liver.
He has undergone chemo and immunotherapy from Dec 25- May 25.
Then he persisted with limited success taking palliative chemo tablets from August to mid October with several AKI situations caused by diarrhoea and dehydration.
Since October 17th my husband has not received any treatment but he has been left seriously weakened and underweight through all these side effects.
This is not helped by his poor diet caused by intolerance to a large variety of foods due to smell, texture and taste.
He is mostly surviving on Forticip drinks, cups of tea, tinned fruit and a mouthful of banana. He can tolerate an egg yolk and smooth tinned or packet soups.
We have tried all sorts of food and drinks but many result in him being very sick, usually bringing up a watery bile like liquid almost as soon as the food touches his mouth.
Currently he is back in hospital and he is being treated for a 4th AKI.
They are trying to replace the low potassium and magnesium and other chemicals. My concern is how to maintain these levels when we eventually go home.
Are these symptoms a common situation in patients with bile duct cancer?
Also is there any evidence for the benefits of hypnotherapy to help combat the aversion and nauseating effects of food?
I would be very grateful to hear your comments.
Yours Vanda
