Hello and thanks for posting

Some very slow growing brain tumours can be present for many years, even since childhood without causing obvious symptoms.

DNET's ( dysembryoplastic neuroepithelial tumours ) are known to grow very slowly and often first show themselves through seizures, so it isn't impossible that your symptoms could be related to the tumour. Many people only discover them in adulthood even though the tumour may have been there for decades.

I imagine your neurologist is suggesting you take anti seizure medication as a safety measure even though they aren't certain that the tumour is causing the seizures. It's difficult to decide what you should do when different health professionals give different explanations. But as you probably know, only you can make that decision. I think the decision would depend on how much the seizures are impacting your life. If you think it would help to get more clarity on what you might do, do talk to your neurology team again.

I hope this is of some use. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Kind regards,

Celene