Hello Elizabethr and thanks for your post,

I am sorry to hear about your situation.

It is good to hear that your epilepsy is well controlled. Before chemotherapy is given in a lot of cases the doctors like to check how the kidneys are functioning. How well the kidneys are working may affect the type of chemotherapy that you are given or even the dose.

I can't say what effect the treatment will have on your epilepsy but the doctors may not be too concerned if it is well controlled and you have had epilepsy for a while. If you are having oral chemotherapy at home you could always ask to speak to a pharmacist at the hospital about the epilepsy medication you are currently having with any other medication.

Do continue to remind the doctors about your epilepsy. If you are under the care of a neurologist you could get in touch with them once you know about the chemotherapy you will be offered.

You may find it helpful to contact Epilepsy Society to see if they have any information about chemotherapy and the possible effect on epilepsy.

Every person reacts to treatment in different ways and I do hope everything goes well for you.

If you would like to talk things through with one of the nurses on the helpline then you are welcome to give us a call. The number to ring is Freephone 0808 800 4040 and the lines are open Monday to Friday 9 am to 5 pm.

All the best,

Catherine

Had the definitive biopsy yesterday looks like its both radio and chemotherapy, I have to look forward to,   Its a bit scary at the moment and whilst I was concerned at the lack of speed suddenly things have become frighteningly fast

Hello Elizabethr,

Thank you for your further post, it is understandable that you may be feeling overwhelmed and scared, all of which are normal feelings.

You may have seen our website, which has information on tonsil cancer and treating tonsil cancer, which I hope is useful.

As Catherine mentioned already, please feel free to give one of our nurses a call if you would like to talk things through.

I hope all goes well with your upcoming treatment,

Jemma

I will contact you just a test to check kidney function later today