Toggles - diagnosed with stage 3b SCLC lung cancer. Prognosis 3 - 6 months. Decided against treatment. Would like to chat to others who made the same decision

On September 23rd I was diagnosed with Stage 3 b sclc lung cancer. The prognosis was 3-6 months. I have decided to forego RT, CT and immunotherapy. I would like to chat with someone in a similar position who has come to the same decision. I am concerned and aware that my position may offend those who have sought treatment.  How could I chat with those in the same boat,  there doesn't seem to be a sub group?

  • Hello Toggles, and welcome to the club that no-one ever wants to join.  I was first diagnosed with breast cancer (stage 2-3) six years ago, and about two years ago I decided to stop my treatment.  Yes, it might offend some people who have decided to stick with their treatment, but frankly, it is none of their business.  They have made their decisions and we have made our decisions.  It is no-one else's business.  I wish you well, xx

  • Hi there and thanks for the post

    I am sorry to hear about your situation, this must be a difficult time for you.

    Every patient has the right to choose to do what is best for them in their situation and the decision you have made I hope feels right for you.

    You have posted on the ask the nurses section of cancer chat and whilst anyone is welcome to post here you may also like to post on a different thread or in a different category as well to see if you get more people getting in touch there.

    Whilst cancer chat has several areas for questions and discussion there are no guarantees there will be someone in a similar position to you at this point in time.

    I am wondering if you have thought about reaching out to other organisations such as Every breath lung cancer support charity to see if they can put you in touch with someone to talk to.

    If you have now been discharged from your hospital to the care of your GP and palliative care they too may be able to point you in the direction of local support services and other patients who may be in the same boat as you. Often local hospices offer day hospice services to patients who are palliative and are usually positive environments not just for symptom management but also for patients to come together and enjoy activities and conversation with one another.

    I hope you also have family and friends around you to support you at this time.

    Please get back in touch if you have more questions. If you would like to speak with one of the nurses over the phone please do call us 0808 800 4040, we're here weekdays 9-5.

    Take care,

    Naomi

  • Hi Violet girl, thank you for your reply. I'm just relived to hear from someone,  anyone, else who has made what many have described as a brave decision : it's not.  Not for me at least. It is the only logical decision given my relatively short prognosis of 133 days ...and counting... For me the uncertain benefits of pitching into circa 60 days of ,by definition, palliative RT and CT etc is an unattractive trade off given the near certain deleterious side effects of treatment. Worse, I understand that said side effects won't kick in for circa 2 weeks. By then I'd be trapped in a downward spiral of decline and self imposed additional ill health. A no brainer. Or is it ? Have I misunderstood the literature? May I ask too why you too have opted not to pursue these options,  tho I perfectly understand if you prefer not to respond. As you say it's our choice. Possibly one of very few left to us to exercise. Either way,  thanks again and take good care of yourself. Kind regards Terri