My amazing Dad is 84 years old has a protatectomy in 2017. His psa levels had increased to 7 in may and then 24 in July. He has dementia diagnosed last year. He had various tests in August because of blood in his stools and is found to have kidney cancer and lymph nodes enlarged and pressing on kidney. He was put on hormone therapy in July which reduced his psa to 16 but that has been stopped and his oncology consultant has discharged him and advised they can do nothing further for him and advised we stop any invasive tests as we are wasting nhs resources. She had told us this 18 months before but then sent an appt letter and my m wished to continue then. Urology say he has a Gleason score of T3a and we have refused any tests because of dads immobility etc and as advised. A bag was also offered and refused as dad would not be able to cope With this. Dad is being treated symptomatically. He has periods of diarrhoea and then constipation for a couple of days but we do not know if this is because of cancer or dementia. He  also suffers from incontinence he has been told he has months to live. Now discharged from urology and oncology do you know what happens and if we have to contact someone or if they just contact us. Can you please advise us.