Hello Betty

Welcome to the forum. Youve certainly been through a lot of harsh treatment. I do not have tongue cancer but have had radiotherapy to neck throat jaw and tongue and found it brutal. After 10 years remission cancer has returned and Im now on palliative immunotherapy with cemiplimab. You may be prescibed similar drugs pembrolizumab or nivolumab. I get very few side effects from it itchy rash and fatigue. It has transformed my life and slowed the advance of cancer. I dont feel so ill anymore and have a fairly good quality of extended life with only moderate pain from metastases in my spine. I read this article on BBC which may be of interest.

https://www.bbc.co.uk/news/articles/ce82gderpl9o

I hope someone on this forum can give you more specific information on its effects on improving swallowing and speaking. If you are offered immunotherapy say yes.

Ed

Hello Betty

Welcome to the forum. Youve certainly been through a lot of harsh treatment. I do not have tongue cancer but have had radiotherapy to neck throat jaw and tongue and found it brutal. After 10 years remission cancer has returned and Im now on palliative immunotherapy with cemiplimab. You may be prescibed similar drugs pembrolizumab or nivolumab. I get very few side effects from it itchy rash and fatigue. It has transformed my life and slowed the advance of cancer. I dont feel so ill anymore and have a fairly good quality of extended life with only moderate pain from metastases in my spine. I read this article on BBC which may be of interest.

https://www.bbc.co.uk/news/articles/ce82gderpl9o

I hope someone on this forum can give you more specific information on its effects on improving swallowing and speaking. If you are offered immunotherapy say yes.

Ed

Thank you Ed

This is exactly the type of info:experience I’m looking for

im glad it’s giving you some positive outcomes and obviously I’m hoping for the same

its Nivolumab I’m signed up to and just waiting for a start date

thanks for sharing and link.,

theres a minefield of technical info out there so simply your experience so far…is useful...and I hope it continues to go well.,…