Aggressive melanoma - secondary cancer in the brain

My husband was diagnosed with an aggressive form of Melanoma 12 months ago stage 3,now he has been diagnosed with secondary brain cancer. The disease is extremely aggressive and has spread throughout all areas of his brain.We’ve been advised that his life expectancy is between 8 to 12 weeks. Over the past 10 days, Joe has lost the ability to walk unassisted and is now reliant on a wheelchair. His hand coordination is deteriorating, and I fear feeding himself will soon become difficult.He completed four courses of immunotherapy, and while we’ve been told there is no cancer in the body, the remaining disease is confined to the brain.His sleep is now very broken, with nightly waking every hour or so due to needing the bathroom. As his full-time caregiver, I’m hoping to understand what medical, practical, or emotional support may be available—to help ensure my husbands comfort and preserve his dignity through this stage, and to support me in managing these demands.Any advice or resources would be deeply appreciated. 

  • Hello and thanks for posting

    I'm sorry to read about your husband's situation. This must be an incredibly difficult time for you both.

    We have information on our website, about supporting someone with cancer both emotionally and practically The charity Macmillan Cancer Support has some further information on their website. They also has information on looking after yourself and how to access support.

    Maggie's centres provides a variety of support for people affected by cancer. The cancer care map also lists local support services. 

    Since your husband is deteriorating , it's probably best that he's assessed by his GP. They can discuss his symptoms and possibly adjust or add to his medications to improve his comfort.  I wonder if your husband has access to a social worker. If help with personal care is needed they can assess for carers to come in and can arrange a care package.

    I’m not sure if he is being supported at home by a community palliative care team, often they are known as Macmillan nurses. They are experts in controlling cancer symptoms and can provide emotional support to you both. If he doesn't have a palliative care team involved in his care, he could ask his GP or hospital team to refer him.

    I hope this is of some use. Give us a ring if you would like to talk things through with one of the nurses on our helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene