Advanced prostrate cancer

Yesterday Oncology phone as normal every 3 months.  I was expecting the call for my husband.  Asked how he was, the usual reply is I’m fine and I haven’t got any pain.  I explained he has dementia and can’t eat without walking around in between eating and a few other issues.  She told me that they are not going to give him any more treatment that he was being transferred to our doctors care and were discharging from oncology.  He is 82 has dementia and is partially sighted.  Last time they seen him his his PSA has risen so along with his hormone injection they started him on Bicaluamide 50g per day.  This reduced his PSA in very quickly. But again even though it’s not a lot it’s on the move again.  I haven’t told him and I am quite numb!  They asked if we would like to speak to them over the phone or face to face.  I asked for face to face, but this won’t take place till October the 14th.  I’m really not sure what to prepare for, I have told our children.  They are all upset and asked me the time frame.  Do I take him on holiday and other things so he can enjoy what time he has left or just leave things alone without putting pressure on him.  He is happy to just sit at home.  But he keeps on about going to USA wheee my other daughter and son live he is always very happy theee when we visit, I just need to know what to expect. 

  • Hello, and thank you for posting.

    I am sorry you are going through this.

    I think a face-to-face conversation with the team is a good idea, then you have time to sit and think about your questions, write them down, and then ask them when there.

    It is important you understand the decisions that are being made by your husband's specialist doctor, so do ask them everything you need to about this decision. It may be that they send a letter out with these updates in his plan, before the October appointment, your husband's GP will also get a copy of this, so you may be able to discuss this with them too.

    What you do from here, in regards to holidays etc, is a discussion to have between you all as a family. Some people like the idea of doing trips, but once they start looking at all of the organising, the travel insurance, and support for the flights, it can feel a bit too much. So it may be that you talk to your children in America about trying to come here instead.

    At the moment, you have a lot to process and think about. You know your husband better than anyone else, so you know when and how to pass on information, and if he is going to be able to take it on board. I hope you have support at this time.

    Do ask your husband's GP about palliative care or Admiral Nurse support if you do not already have it. They can provide support for you at home and help with any symptoms that he has.

    Take care, and if you want to talk any of this through with a nurse, then do call us on 0808 800 4040. Lines are open mon-fri, 9-5.

    Sarah.