Positive FIT test but told too young

I have been having symptoms lately of Bowel Cancer such as bleeding, pain (cramping), straining etc. I have kept getting told by GP its likely Hemorrhoids and treatment for that which hasn't worked. I have significant family history of bowel cancer with 8 family members dying in the last 6 years including my Dad. I have done a FIT test which has come back positive 400+ ive also had bloods which were a little abnormal. 

My GP referred me to the 2 week wait but this has been rejected because of my age as im only 29. Ive been referred as urgent now to Gastro but they've said its at least a year wait even as urgent. 

I'm stressing, its taken me a long time to even get people to listen to me to get a FIT test and now I've got to possibly wait a year. I understand age is a factor but surely with us having the hereditary gene this trumps my age?

I don't know what to do now. How am I supposed to wait a year thinking i could have cancer. 

  • Hi Amy and thank you for your post.

    I am sorry to learn that you are having symptoms that are causing you concern.

    Unfortunately it is not uncommon for a hospital specialist to reject an urgent referral.

    Try to speak with your GP to discuss your concerns about the referral. Is it possible to be referred to a different specialist (maybe at another hospital) or look into other options. 

    If you have not yet done so, it may be helpful to contact the hospital's Patient Advice and Liaison Service (PALS) and voice your concerns.

    If you are able to afford it there is the possibility of going private.

    Has your GP referred you to a genetics clinic. A geneticist can carry out a detailed assessment and can confirm whether you require screening or genetic testing. This may add weight to your urgent referral.

     I hope you can get this sorted out soon. 

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5 pm Monday to Friday.

    Kind regards

    Tina

  • Hi, thank you for getting back to me. I was referred to the genetics clinic years ago so believe this has already been done and confirmed we have the gene. I have health insurance so I'm going to contact them next. It's just upsetting that because of age you're not treated the same as others with symptoms. Cancer doesn't care about age.