Hello and thanks for posting

I'm sorry to read about your wife's situation. This must be a difficult time for you both and appreciate you wanting to explore all possible options.

As nurses on here we don't recommend treatment as this needs to come from your wife's specialist team who are familiar with all her medical details.

Lymphoma Action have some information on their website on primary CNS lymphoma (PCNSL) Macmillan has some further information on primary CNS lymphoma on their site.

It might also be worth your wife having a chat with her specialist nurse (CNS) as they know her situation and may be able to advise her further. You often have to call and leave them a message and they will get back to you. 

You have posted on the ask the nurses section of the forum but I see you are asking for other users experience. Anyone is welcome to reply on here but you may get more response from others who may be or have gone through similar by posting in a different section of the forum as well as here.

Lymphoma Action also have an online forum that also may be able to offer advice.

I hope this is of some use. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Kind Regards,

Celene