I am happy to learn that you are coming to the end of your cancer treatment. Although I understand that this can be a bit daunting.
I’m not sure what happens next. Each NHS Trust may have a different procedure. I would call the breast cancer unit to ask. Some breast units offer Open Access Follow Up (OAFU) after treatment has been completed. You may like to read The Royal Marsden’s description of what OAFU entails.
Many women worry about coming off their hormone therapy, but research does indicate that there is evidence that it continues to reduce the risk of the cancer returning for many years after you stop taking it. There is some information about this on Greater Manchester Cancer Alliance Patient Information Leaflet.
Most people who stop taking tamoxifen do not have any problems. Although some have experienced fatigue, brain fog, and hot flushes, I would discuss with your breast unit what to expect when finishing tamoxifen and who to contact—either them or your GP—if you experience any of these symptoms.
I hope this information gives you some idea of what happens going forward.
Please get back to us if you need any more information or support. You may find it helpful to talk things through with one of the nurses on our helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5 pm Monday to Friday.
