Secondary breast cancer in the bone - Fulvestrant

I started my treatment last December and I find the injections, every 4 weeks,  into the base of my spine/buttock area particularly painful. (Fulvestrant).

Surely the nurses who give these dreadful injections should be trained better, one I had put the liquid in so fast I nearly passed out.  I could not sit back in a chair for a week, nor have a bath as I could not stand the heat.  Another injected straight through my sciatic nerve and I couldn't walk properly for 5 days, the pain continued for 3 weeks.  I start to get anxiety a week before these injections and by blood pressure on the day is through the roof.  I have mentioned it to the Oncologist but he shrugged his shoulders and said there was nothing he could do.  Is there anything I can do?  They should take a minimum of 2 minutes each injection, which I pointed out to the nurse last time, she looked very surprised that I had said anything.  Are there alternatives to introduce this into my body?  Also is there any medication I can take to offset the tiredness I feel in the week before the dreaded injections.  I still go out to dinner with friends and meet in the pub for a game of cards etc but the exhaustion I feel completely ruins this.  

I was listening to Trisha Goddard, on the radio who has the same as me, she said she is given a drug to counteract this exhaustion, do you know what it is?

  • Hi there Sammirocky and thank you for posting here

    I am sorry to hear about your negative experience of having the fulvestrant injections and the side effects it causes you.

    I can appreciate the apprehension you feel in the lead up to each treatment and to start questioning what can be done to help you with this.

    You mention speaking with the nurse last time you had this but perhaps you could speak with the lead nurse to discuss the problems you have had so far and what can be done moving forward to make this more tolerable for you. I'm afraid fulvestrant can only be given by intramuscular injection.

    Unfortunately no one here can say whether there is an alternative medication suitable for you and this is something you would need to ask your oncologist. Likewise I am not sure which drug Trisha Goddard is referring to, i'm afraid.

    There are many different strategies of managing and treating cancer fatigue, that you can read more about on the CRUK website. Occasionally medications may be used to help depending on the individuals circumstances. This is something worth speaking to your own team about to see what they suggest.

    Best wishes

    Naomi