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Help for Mother - she's been diagnosed with acute myeloid leukaemia and will be receiving a bone marrow/stem cell transplant

Kaii
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Hi, I’m Kai, my mam has recently been diagnosed with acute myeloid leukaemia she is 50 years old, she’s receiving a bone marrow /stem cell transplant from a 19 year old male in Germany, I would like to hear some stories from people who have also been through this, I am trying my best to be there but I would like to do more for her , know more and hear peoples stories, I still struggle myself but I have to remain strong for her, please may someone reach out to me I would appreciate it so much, thank you for taking your time to read this,

Kindest Regards

Kai

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    Hi Kai, 

    I am so sorry to hear about your mam's situation. I am sorry that I don't know much about myeloid leukaemia, but wanted to welcome you to our forum. Hopefully, someone with more experience of this will be in touch shortly.

    I know from my own experience of breast cancer, that any support you can give your mam will be so welcome. I lost my own mum to secondary breast cancer and felt pretty helpless at the time, but I have since realised that I didn't do too badly. Having my daughter there for me throughout my cancer journey has been so reassuring. You are one of the people who knows your mum best. Take things day by day. You will notice things that she needs, or that have been overlooked by her care team. Don't be afraid to ask for anything that might help to make her life more comfortable. You will find that `just being with your mum and talking to her will be very helpful. Don't forget that it helps to make memories with her too. Does she have any people that she wants to see or places she wants to visit? If she is well enough, you might be able to facilitate these.

    Please keep in touch and let us know how your mam gets on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hello Kai and thanks for your post,

    I am sorry to hear about your mother's situation.

    You have posted in 'ask the nurses' but if you post on another thread or start your own you may find that you get other responses from patients who have had stem cell transplants.

    You may find it helpful to contact Anthony Nolan who can put you in touch with other families going through a similar situation.

    We have some pages on our website about having a transplant and then recovering after a transplant which you both may find helpful to look at. Here are the pages

    I am not sure where you are living in the UK but several hospitals up and down the country have Maggie Centres that help support patients and their relatives.

    It can be very hard not knowing what to expect but I am sure the nurses and doctors at the hospital will explain the treatment to your mother and how you can help support her.

    Do give the nurses a ring on the helpline if you would like to talk things through. the number to ring is Freephone 0808 800 4040 and the lines are open Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine

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