RAI Treatment

I am due to get my radioactive iodine treatment for thyroid cancer in a few weeks time. I am always very positive and was told that my last pathology results showed no signs of any cancer was present from my last completion surgery. 

However, doubts and worries are starting to creep in again. Am I going to be more at risk of getting other cancers now? Is there a risk it will come back? 

The prognosis has always been good for me, as I know is the same for many with thyroid cancer, but I feel that because my treatment will soon almost be over my focus is turning to the 'what if' ...... I want to continue on my positive path but feel I need to be informed too. 

Thank you

  • Hello Saz-Ann and thank you for posting,

    I am sorry to learn that you are having treatment for thyroid cancer.

    The best person to ask these questions to would be your specialist as they know your situation, the risk of cancer returning will depend on the type of thyroid cancer, the stage (its size and whether it had spread) when you were first diagnosed, and how well you respond to treatment. The risk is often low if it is an early cancer.

    The team at the hospital should talk to you about follow-up appointments and how often they will be. This is so the doctors can check on how you are and check there are no signs of cancer.

    Having Radioactive Iodine may increase your risk of a second cancer in the future, but studies have shown this risk is thought to be low. This is also something you could discuss with your specialist or nurse specialist (CNS).

    When treatment finishes you may find you go through many different emotions and it can be a time of uncertainty. You may find our information on life beyond cancer helpful along with Macmillan Cancer Supports after treatment information.

    I hope this helps in some way, please feel free to get back to us. You can speak with one of our nurses on the helpline Monday to Friday between 9am and 5pm freephone 0808 800 4040.

    Take care,

    Jemma

  • Hi. I am not a nurse, but I had thyroid cancer five and a half years ago. Given that you are having RAI, I assume you have one of the two less serious forms of thyroid cancer, papillary or follicular.

    From what I have read and what my team told me, there is a chance that RAI can slightly increase our risk of certain other cancers, but it sounds like it is a case of if the general population have a 1% chance of one of those cancers, we might have a 1.5% chance. Given that thyroid cancer is a relatively mild cancer and that most people are at fairly low risk of reccurence, I am assuming they would not risk doing RAI if it greatly increased the risk of more serious cancers.

    And yes, thyroid cancer can come back, but for most people, the risk is low. Unless you were told you were at particularly high risk (like if you have been told your cancer has spread to your lungs or bones or something), then the odds are the highest risk of reccurence you are likely to have is 20% and it could be significantly lower.

    As well as that, one of the studies I read said that most recurrences are in the lymph nodes and that those are "only a nuisance." I mean, obviously, none of us wants to deal with recurrence and I do get moments before I go in to get my results for my yearly scans and so on where I think, "oh gosh, what if it has come back? I really don't want to have to deal with all that again!" but I generally work on the premise that I'll worry about it if it does. The odds are against it and even if it does come back, it's not likely to be any worse than it was the first time around.

    The worst is probably over for you now too.

    I will say my first year or so after having thyroid cancer, I was...sort of waiting for the other shoe to drop, thinking "I've had cancer. It can't be this easy" (by the standards of cancer, obviously; it isn't easy by normal standards but compared to what one hears about people going through other cancers).