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Chemotherapy induced peripheral neuropathy.

Tadger1951
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I suffer from chemotherapy induced peripheral neuropathy after large doses of chemotherapy ( cisplatin ) to kill a tumour that was wrapped around my kidneys. I have suffered with this problem  since my chemotherapy finished nearly 8 years ago and sadly there does not appear to be any treatment that will rid me of the constant pain and tingling I have in both feet. I have seen my GP and the tablets he prescribed made no difference and unfortunately after contacting various bodies that provide advice to people living with cancer there does not appear to be any permanent solution to this problem. If anyone has any helpful advice please let me know.

Parents

  • Hello and thank you for posting,

    I am sorry to learn of your situation, this must be difficult.

    Peripheral neuropathy can be one of the most challenging side effects of chemotherapy, research is looking into this but still has a long way to go. Unfortunately, some people do not recover fully and can have this permanently.

    I don't know if you still have contact with your hospital team and whether you can contact them for any advice,

    You may also find it helpful to repost on our 'living with cancer' section where more people may read your post and share there experience.

    If you would like to talk things through with one of the nurses on the helpline, we are available between 9am and 5pm Monday to Friday and the freephone number to call is 0808 800 4040

    Jemma

Reply

  • Hello and thank you for posting,

    I am sorry to learn of your situation, this must be difficult.

    Peripheral neuropathy can be one of the most challenging side effects of chemotherapy, research is looking into this but still has a long way to go. Unfortunately, some people do not recover fully and can have this permanently.

    I don't know if you still have contact with your hospital team and whether you can contact them for any advice,

    You may also find it helpful to repost on our 'living with cancer' section where more people may read your post and share there experience.

    If you would like to talk things through with one of the nurses on the helpline, we are available between 9am and 5pm Monday to Friday and the freephone number to call is 0808 800 4040

    Jemma

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