Gallbladder cancer

I have been diagnosed with T2A gallbladder cancer. I have had gallbladder removed and CT scan shows it's not spread but there is a tiny nodule in lungs. I have been told this is prob not cancer but I will have another CT scan in 3 months. I am also to see Oncologist next week to discuss chemo.

I am shocked and feel dazed. What questions should I be asking. How do I find out what best treatment will be. For example should I be pushing to have lung nodule checked earlier? 

I am not feeling very confident with my care at moment as large polyp was not noticed in my MRI scan last November. ( It was there and consultant can not explain why it was missed)  I was told it was gallstones and cancer was not detected until gall bladder removed and sent for biopsy.

  • Hi Confusedsad, and thank you for your post.

    I am sorry to learn of your recent diagnosis. It does sound like this is a difficult and frightening time for you.

    It is difficult to comment on someone's treatment as this is usually decided on a case-by-case basis. After a cancer diagnosis, the case is discussed in a Multi-Disciplinary Team (MDT) meeting where all the different doctors involved in your care discuss your case and work out a treatment plan.

    The MDT approach is recognised as the most effective way to reach balanced recommendations based on research and NICE Guidelines.

    It seems the MDT has recommended chemotherapy treatment since you will be seeing an oncologist soon.

    However, you are entitled to request a second opinion about your diagnosis, recommended treatment plan or care, if you would like to.

    It's understandable to worry about the possibility of cancer, but it's encouraging that your doctor is being cautious with a follow-up CT scan scheduled in 3 months. Three months is the usual interval period between scans when monitoring. The scan isn't intended for immediate diagnosis, but rather for monitoring the situation and observing any changes. More information on lung nodules is on this site from an NHS trust.

    People can experience a whole range of emotions, there’s no right or wrong way to feel. We have information about how to manage your emotions, which you may find helpful.

    Many people benefit from counselling. If you would like to access counselling services, it may be possible for you to receive NHS Counselling, but the length of the waiting list will vary from area to area.

     The hospital where you are being treated may have a cancer information and support centre, sometimes these are run by the hospital or Macmillan Cancer Support.

    Maggies can provide support and information to people affected by cancer. Many of their centres have trained psychologists who can provide one-to-one or group counselling. You do not need to live near a centre. They can provide support over the phone. Their website also provides advice and information on how to talk to healthcare professionals, which you may find helpful.

    I can appreciate that there is a lot of uncertainty for you at the moment.

    I hope this helps a little.

    Please get back to us if you need any more information or support. You may find it helpful to talk things through with one of the nurses on our helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

     Kind regards

    Tina