Not diagnosed but want to do radiotherapy

Hi, last Aug a routine ct scan showed a nodule had grown from 2mm to 8mm in 2 years. They scheduled lung surgery lobectomy of lingula, I refused as ongoing tummy issues and after being ignored and dismissed eventually a ct angiogram on my mesenteric artery showed a need for an immediate stent in SMA. Now I am better have gained some of the weight I lost, am feeling great and ready for surgery, they are refusing and saying I have to have radiotherapy.. I have no diagnosis of lung cancer, just a suspicion based on my previous smoking history. 

Im furious as they were happy to operate before my mesenteric diagnosis, despite the fact I’d lost 2 stone was vomiting regularly and in constant pain when eating or drinking. 
I do not have a cancer diagnosis .

3 years ago they told me I had bowel cancer, then 6 weeks later told me I didn’t. I had a double volvolus and lost 14 inches of colon and an ileostomy was formed and later reversed. 

A PET scan showed lots of activity in my tummy, they told me again ‘suspected’ cancer. Then after tests they cleared me to go ahead with lung surgery. I refused lung surgery as was so ill ( and being ignored) until eventually the colon surgeon said the histology indicated ischemia and ordered the ct angiogram ( but not urgently, it took a month). Within 2 weeks of the results I had a stent fitted.

How am I expected to believe a thing they say? Is it lung cancer? What will radiotherapy do to me? I’m 65 Female. 

  • Hello and thank you for your post,

    I am sorry to learn of your situation this must be a very difficult time for you.

    As cancer information nurses not involved in your care we cannot give a medical opinion or comment on your situation.

    I can appreciate it isn't very clear when you have not been given a full diagnosis.

    I wondered if your team is aware that it is unclear to you and whether you have a specialist nurse (CNS) you could speak with.

    In this situation, some people will ask for a second opinion to help clarify their situation.

    If you are finding communication from your team at the hospital difficult, it might also be worth talking to your local PALS (Patient and Advice Liaison Service). They are a confidential service supporting patients with any aspects of their care they may not be happy with.

    Please feel free to come back to us. If you would like to speak with one our nurses on the helpline we are available Monday to Friday and the freephone number to call is 0808 800 4040

    Jemma