Bladder/prostate cancer - having so many problems having radiotherapy

Hi, diagnosed with bladder/prostate cancer June 21. Bladder/prostate removed and stoma inserted November 21. Spent all of 22 in and out of hospital, 13 times with sepsis, nearly died twice. Told in Jan 23 that the cancer had returned, a particularly aggressive form and I had "many months to a year to live" Because of the sepsis chemo was not an option and radiotherapy did not come into the picture. Had a nuclear blood test to see if I could have immunotherapy but apparently my kidneys would not stand it. So I was pretty much left to my own devices. In the mean time we moved to Scotland and I was having regular ct scans and seeing a consultant in oncology. Made it through 23 and decided to walk at least a kilometre every day throughout 24. Made that, covered almost 400 miles. Went to see the consultant at the beginning of January and he told me radiotherapy was now an option and I had a course of five sessions, Monday to Friday in the middle of January. Oh how I regret that radiotherapy,  the after effects have really caused me problems and the consultant just seems to be brushing me off. So unhappy, so depressed, in pain and feel like I am just waiting to die

  • I have recently completed 20 'Fractions'  of Radiotherapy and there are some side effects. Talk with your radiologists and they will help you. Take care.

  • Hi Deefur and thank you for your post.

    I’m sorry to read about your situation. It sounds like you are going through a lot. The treatments you had can take a toll on your body even months after treatment has finished. The side effects like tiredness, bladder symptoms, and pain are unfortunately quite common, and they can linger on for a while.

    I am sorry you are regretting having the radiotherapy. It can be quite normal to become depressed after finishing your treatment. There’s really no right or wrong way to feel. But we know that talking can often relieve some of the distress and anxiety. Many people do benefit from counselling.

    As you are aware the NHS provides free counselling but how long the waiting list is will vary from area to area.

    The British Association For Counselling and Psychotherapy (BACP) can provide private counselling. Their telephone number is 01455 883300. Email bacp@bacp.co.uk.

    There are Maggies Centres that provide emotional support to people affected by cancer. Many of their centres have trained psychologists who can provide one-to-one or group counselling. You do not need to live near Maggie's centre as they can provide advice and support via the phone.

    Are you still able to walk everyday? This activity offers numerous health advantages, particularly in enhancing your mood.

    Getting support when you have pain can be very helpful. Maggies has information, which you may find useful, on how to approach your doctor to get the most out of your consultations. Maybe you could speak to your GP or your specialist nurse, if you have one.

    There are various treatments available to treat pain. It maybe you need to try one or two to find the most suitable for you.

    I hope you can get this sorted out soon. 

     Please get back to us if you need any more information or support. You may find it helpful to talk things through with one of the nurses on our helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards

    Tina