My wife is now 4 years with Lung Cancer.

Her brief history as follows:-

February 2021 admitted to hospital for removal of the top 2 lobes of her right lung which presented with a mass that over a 3 month period appeared to be developing.

6 sessions of rejuvant chemotherapy with both Citoplatin and Pemotrexed.

8 months following the last chemotherapy 2 new areas of tumour were found in the remaining section of lung with another one appearing in her lymph in her neck.

We were advised at that time that the diagnosis was "incurable" and that she wold be started on Pembrolizumab Immunotherapy (for a maximum of 2 years) and Pemetrexed Chemotherapy for life.

The medication to be given every 3 weeks.

We are now nearly 18 months into the new treatment and over the last 2-3 months she has been experiencing more and more lower back pain coupled with a 6 kilo weight loss (although her weight is normal for her stature at the moment)

We have mentioned this to the variety of consultants we get (they are changing every month at the moment) but nothing has been done to discover the potential issues (not sure why) and we find it a difficult thing to address when they dont really read the case notes and have little or no empathy available to share with you.

Im obviously concerned at the new symptoms and would just like to know the best way to push this forward and be heard.

Thank you

Nick