New diagnosis

Hello. My husband has just been diagnosed with liposarcoma . The liposarcoma is in his scrotal area. A biopsy  confirmed this diagnosis. We found this out 2 days ago .We are told an mdt will take place, will this still go ahead due to the Easter holidays? We have to go to the specialist centre in Leeds when we hear from them. Am thinking be will need an mri to see if it has spread anywhere else, possibly orchidectomy , radiation or chemotherapy.  The liposarcoma is about 20cm . Is this huge? Is it even operable. I am so worried for him. Please any advice.. He is well in himself at present 

  • Hello and thanks for posting

    I'm sorry to read about your husband’s recent liposarcoma diagnosis. This must be a difficult time for you both.

    Although a 20cm tumour is fairly large, the size alone doesn’t necessarily mean he can’t have surgery. What matters just as much is where it is, how it’s affecting the surrounding tissue, and whether it has spread anywhere else. That’s why further tests such as an MRI, CT or PET scan are often needed to give the doctors the full picture before they decide on the best course of treatment.

    Yes, after a cancer diagnosis patients are discussed within a MDT ( Multi-Disciplinary Team) meeting. I’m not sure if this meeting may have been postponed over the Easter Bank holidays but normal service usually resumes today now the Bank holidays are over.

    Once your husband is seen at the specialist centre in Leeds and they have reviewed his scans and biopsy results, they will be in a better position to advise what the treatment plan will be.

    I hope this is of some use. Please get back to us if you need any more information or support. You may find it helpful to talk things through with one of the nurses on our helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

  • Thankyou so much Celene for your response. Do you know how quickly we will be contacted after the mdt? Is it usually the same day? Am aware that time is passing by since his  diagnosis, today is day 6 since we found out.

  • Hello and thanks for your further post

    After an MDT meeting, patients are usually contacted within a week or two with their treatment plan. However, the exact timing may vary in different NHS trusts depending on the hospitals workload and resources. But they do aim to try and contact patients as soon as possible.

    I hope you and your husband hear something soon.

    Best wishes,

    Celene