It is hard for us to answer questions like this as we are not involved in your clinical care. Your specialist team are better placed to advise you on this as they are familiar with all your medical details. If you have a specialist nurse involved in your care, then perhaps they can provide you with further information. You often have to call and leave them a message and they will get back to you.
Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.
