Anal cancer

My husband has been diagnosed with T2 anal cancer. The specialist gave 2 options completely removing bowel or removing cancer. We were told growth is about 2cm. (We are waiting for another specialist to examine him to see how much the cancer has grown into the tissue)Why would he say total bowel removal when growth is so small. It has made us so anxious.  

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  • Hi Wendy

    I’m sorry you have had this news  it’s scary and being anxious is normal  

    I was diagnosed  with T2 N2 anal cancer last September. It had already spread to the lymph nodes in my groin on both sides. My tumour was 2.5 cm. 
    My treatment was chemotherapy & radiotherapy. 28 days of each. 1st chemo was via IV (Mitomycin) and then 28 days of chemo tablets twice a day (Capecitebine) Monday-Friday.   I finished my treatment at the end of December  I had the chemo tablets & the radiotherapy each day  

    The treatment wasn’t easy towards the end but I got through it & have made some lovely contacts on here. 
    The first doctor I saw wasn’t an oncologist - he did the colonoscopy and he told me that if it was cancerous I would likely have to have a colostomy & have my rectum removed as the tumour was low down. When the biopsies came back positive he referred me to the cancer  hospital. They said to not worry about surgery as there are very good treatments with good success rates at my stage. So I went ahead with that. I’m having scans this week to see if it has been successful.  I have had to wait until 3 months after my treatment finished before I could get scanned. MRI & PET scans. I get my results in a few weeks. If my cancer is still there then I may need to have surgery but at least I know I tried the other treatments first. 
    If I were you I would get a second opinion before agreeing to surgery. x


  • Thank you so much for your reply. The waiting to see specialist is just the worst. You have given me hope. My husbands growth has not spread yet . I will tell him your journey and hopefully it will give him a bit of peace of mind that something can be done rather than big operation. 

     Please let me know how your scan goes in 3 months.  Good luck keeping my fingers crossed for you. 

    Wendy

  • Hi Wendy

    If you search for anal cancer on here you will see lots of people who have gone through the same or similar treatment as I have. 
    I’ve got my last scan tomorrow and then my results in a couple of weeks. The waiting has been hard - waiting to find out if it’s gone or spread but I am keeping positive. Good luck & if I can answer any questions about my experience just let me know. Take care x

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  • Hi Wendy

    If you search for anal cancer on here you will see lots of people who have gone through the same or similar treatment as I have. 
    I’ve got my last scan tomorrow and then my results in a couple of weeks. The waiting has been hard - waiting to find out if it’s gone or spread but I am keeping positive. Good luck & if I can answer any questions about my experience just let me know. Take care x

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