Do I need to push for haemotology referral?

Morning

I have been unwell for nearly 2 years now. Began with dizziness and bruising. Gp referred me to haemotology but was refused. I've been refused twice and my gp has also done multiple requests for advice to haemotology. 

Symptoms have got progressively worse. In November 2024 I was diagnosed with hashimotos thyroid disease and thought OK that's it sorted. But I'm still not well and last week I saw a gp who unbeknownst to me, specialises in haemotology and blood science and he wasn't happy with my symptoms and ordered various bloods and a chest xray.

To try and cut a long story short, my symptoms/results are as follows :

Over 4 stone weight loss (approx 13 stone to 8.5 stone) hashimotos should cause weight gain so that has caused confusion with Dr's.

Double vision in both eyes

Bruising 

Excessive bleeding eg even the tiniest spot will bleed 

Night sweats 

Headaches 

Swollen ankles 

Skin rashes 

Fatigue 

Nodules in right thyroid lobe

Enlarged lymph node right groin

Recurrent cough 

Keep losing my voice

Recurrent temperature above 38

High platelets (517)

Slightly raised red blood cells (5.2 - 5.7)

Recurrent infections 

Slightly low mch and mcv

Borderline high haemotacrit

High crp 

Sorry I realise that's a lot of info, I've got a telephone appointment on Monday morning with gp regarding latest bloods as platelets are higher, but has anyone got any advice? Should I be pushing for any further testing? Could this all just be thyroid? My symptoms don't seem to correlate with hashimotos but appreciate everyone is different. When this first started my gp was concerned about blood cancers, hence the referral to haemotology. And now the gp last week has concerns about blood. 

I had a private jak2 test last year and that was negative so that's one thing ruled out. 

Any advice would be appreciated x

  • On my latest bloods it says 

    Differential confirmed on blood film

    Platelet count confirmed on film

    Not sure if that is relevant x

  • Hello and thank you for posting.

    Unfortunately, neither the nurses nor anyone on the forum can give a medical opinion.

    On Monday you will be able to discuss this further with the GP so hopefully you will get the information you need.

    I appreciate it must be incredibly frustrating to have these symptoms and feel you do not have a reason, but it is only a doctor who can choose to investigate symptoms or refer you.

    Take care and if you want to talk things through with the nurses on the helpline then do call 0808 800 4040. Lines are open mon-fri, 9-5.

    Sarah.