Using the cancer chat forum

I joined the forum about a month ago and have found it extremely useful..  Thanks for being there 

I wonder though if it could become quite addictive  and for thoughts of cancer to fill up more of one's day than one would ideally like. I wonder if there is also potential to find it difficult/ impactful to hear about cancers with worse prognoses than ones own. 

Di the nurses have any views on this?

  • Hello Hopecalm.  I know this question is directed at the nurses, but I have sometimes had similar thoughts as this.  I was diagnosed with breast cancer 6 years ago.  I am now terminal.  I have been on and off the cancer forum at various times.  I have noticed that I spend some time on this forum and then I tend to take a break from it.  I think that the reason I take these breaks is perhaps for the reasons that you have mentioned.  Sometimes it simply gets too much to deal with.  On the other hand, it is nice to know that there is a place that you can come to where everyone understands what you are going through.  People that have not been on this nightmare cancer journey simply don't have the same level of understanding, even though they might be very sympathetic.  I guess you really do have to walk in someone else's shoes to TRULY understand what they are going through.  I also understand that for some folks, it could be very triggering/upsetting to hear about those people whose cancer prognosis is extremely dire.  My own personal reasons for 'dipping in and out' of the forum is that I feel that I might be able to help others who are going through this (especially those with breast cancer) and also, because I am now housebound, it gives me something to do.  However, I know that I will soon be 'dropping out' again for a while, because I do need that break from it.  

  • Thanks Blue Girl.  Reassuring to hear that others have similar feelings about the forum.  

  • You're welcome Hopecalm, x

  • Hello Hopecalm and thank you for posting,

    A lot of people do use online forums as their preferred method of asking questions or chatting with people in similar situations. Some people may only visit once others many times.

    A lot will depend on where people are with their cancer, whether they are at the point of diagnosis or if they are living with cancer and all that comes with that.

    I can appreciate that some of the posts can be difficult to read especially if they are close to someone's situation and can bring home the uncertainty that a lot people are living with.

    We hope that Cancerchat does provide a safe space for people to ask questions and share their experience. The Cancerchat team will always welcome any feedback. It is also important to know that anyone is welcome to call the helpline and speak to one of our nurses, Monday to Friday between 9am and 5pm Freephone 0808 800 4040.

    Take care,

    Jemma