Hi there and thanks for the post

I am sorry to hear you are currently undergoing tests and are awaiting some results, this of course must be an anxious time for you.

Whilst we can't say what the tumours you have are being caused by, it is important to remember every patient is different and needs to be looked at individually.

Neurofibromatosis is a genetic condition and is usually picked up in childhood. Some people have a mild version of the condition without it causing many problems. Whereas others can be affected more severely causing various health problems. It is worth mentioning to your doctor when you see them and see what they have to say. They may ask you questions about other family members in case a link could be found to warrant genetic testing.

I hope this helps and you know more about your situation soon.

Take care

Naomi

Thankyou,I don't have a lot of family left to ask,and poor mum has dementia so that's a no go... but thankyou and I will ask when I do get to see the consultant eventually xx