Advice on caring for husband during chemo

Hi there,

My husband (39) was diagnosed with bowel cancer in January, had to have emergency surgery due to perforated bowel and starts chemo next week.

Really really wanting to do everything I can to support him through the 6 months of chemo ahead so please, any advice or tips on this would be fantastic!

Any specifics like a good mouthwash to avoid mouthsores, how to reduce chance of nerve damage to hands and feet, are bodily fluids toxic on chemo etc etc would all be amazing if possible.

Thank you so much

  • My wife went through breast cancer. We were told when using the loo and on chemo, it should be flush 3 times after use for the first 3 days. Chemo is expelled after that. But you should get told that anyway if his chemo requires him to do that. Being a guy too, he will also have to wipe the seat thoroughly. Chemo is an irritant, so needs cleaned properly.

    Mouthwash, i have no idea. My wife used a soft toothbrush (a baby one) as her gums began to hurt. Get one in so you're not doing a me, running down to Tesco at 11pm on a Friday. If the toothpaste begins to nip, Amazon sell a toothpaste called "Oranurse". Made for people with altered taste, who find mint hurt, and people on chemo.

    Nerve damage, if i recall, not much you can do about that. But you have to tell the treating doctors about it because each passing treatment can make it worse. So you don't ignore it.

  • Hello IMSH123 and thank you for posting,

    I am sorry to learn of your husband's situation this must be very difficult.

    We do have information about safety at home with chemotherapy which I hope will be helpful.

    We have a general page on chemotherapy side effects that you may find helpful to read with helpful tips, also you can look at the specific chemotherapy drugs that your husband will be having.

    It might also be worth having a check with the chemotherapy unit what mouth wash they recommend as this may vary hospital to hospital, and it is possibly something they may prescribe.

    It is often difficult to know how to prepare as until your husband has the treatment no one can say for certain what side effects he may have.  You may find there is a pattern where he may feel low/ unwell on certain days of his chemotherapy cycle.

    It is worth making sure you have phone numbers you can call should you need any advice with side effects.

    For your information, we also have a page on how to support someone with cancer which I hope will be useful.

    I hope this helps a little, if you would like to speak with one of our nurses we are available between 9 am and 5 pm Monday to Friday and the freephone number to call is 0808 800 4040.

    Take care,

    Jemma

  • Really, really helpful thanks so much for the reply and for sharing the information. 

    Such a tough time for you and your wife to go through, but really appreciate you sharing your experiences 

  • Hi Jemma,

    Thank you very much for all the information. I'll check out the links you sent, and talk to the chemo team about some more specifics!

  • Also look after yourself too.

    It can take its toll on you when caring for your hubby ( mine has cancer too) 

    So how ever that looks for you pencil that time into your day ....it will help keep you refreshed and supported ..

    Hope everything goes as smoothly as possible for your hubbys treatment

    Take care 

  • Aw really do appreciate this, thanks so much. Great advice.

    Sending you and your husband all the best ️