Hello and thank you for posting.

I am sorry to hear about your diagnosis of this very rare type of breast cancer.

As there is minimal information about this, other than some medical papers online, I can see how what you have briefly read may have confused you.

Cancer of Unknown Primaries (CUPS) are sometimes mentioned when this cancer is discussed, but Occult Breast Cancers (OBCs) are very much categorised differently. In OBCs, although the primary cancer is not clear, it does not come under the same diagnosis term and therefore is a sub type. They are treated differently and have a different outlook to CUP's.

For more information on your situation, do keep the communication going between your doctor and the breast care nurse, but I appreciate this can be harder when a diagnosis is extremely rare.

The most up to date information that I can find that may be helpful for you to read are these science pages. Do be aware that these pages are written by medics for medics with practice in America.

Breast Cancer Now, the UK's main breast cancer charity, may also have more information as they are focused on all aspects of breast cancer only. It may be helpful to contact their nurses or post on their forum.

Take care and I hope you get the information you need. If you want to talk to our nurses then do call freephone 0808 800 4040, lines are open mon-fri, 9-5. 

Sarah.

Hi Lisa

Sorry to hear your diagnosis but hope this will give you lots of positive thoughts.

I was diagnosed 2008 at 43 years old with occult breast cancer, 6 lots of chemo, I opted for a mastectomy and had rads. Nothing showing anywhere else.

17 years later and still here ! they did find a small patch in my pelvic bone 2016 and was put on denosumab, a monthly injection to strengthen the bone, been stable so far for 9 years ! 

Hope all goes well xx