What to expect from terminal pancreatic cancer

Hi - my Mum was diagnosed with acinar pancreatic cancer at the start of the year and it has spread to her liver as well as her having a mass on her stomach.  Mum is 82, has been unwell for a couple of years now (including having had a heart attack in October 2023) and was told that there is no treatment as chemo would just make her worse.  Her prognosis is that from diagnosis she'd have 6 - 12 months at most and she has to take enzyme pills before eating.  I don't live locally to my Mum, I see her every month and speak with her every day on the phone.  She had already lost loads of weight and over the last month now eats very little (as she can't face it), feels sick and suffers with a bloated abdomen and upset stomachs - in addition she now feels incredibly weak.  Mum tells me that she feels absolutely wretched when I speak with her on the phone and I wanted to ask if these symptoms are normal for the disease and how long they are likely to go on for?  At present she lives in her own flat and friends help her with shopping etc. but I'm expecting that at some point Mum will need much more care as she won't be able to manage alone.  I have no idea where Mum is on this horrible timeline to know what to expect and when.  Are you able to advise at all?  If you could give me any information I'd be most grateful.  Thank you.

  • Hi there and thanks for posting

    I am very sorry to hear about your mum's situation and appreciate what a difficult and worrying time this must be for you both.

    Unfortunately no one here can say how long she may have left as this is a question better answered by the doctors and nurses involved in her care.

    From what you say it does sound like your mum is deteriorating and is struggling with the symptoms, which are common with pancreatic cancer. It is important that your mum or you ( on her behalf) let her team know about this so they can support her. If she has a community palliative care nurse and a number for them, you could call them to let them know what is going on. If she doesn't have a community nurse and she is under the care of the GP, you can call the surgery to ask if the doctor can assess her and refer her to the community nursing team for care and management.

    There are times when patients may be admitted to a hospice for symptom management or when the time comes end of life care, if this is what your mum wishes.

    We have some information about what may happen in The last few weeks and days of a persons life, that may be useful to read.

    I hope you can speak with someone soon to get a better understanding about what is going on with your mum and that she can access the help and support you both need.

    Do get back if you need to or if you prefer give one of the nurses a call on the helpline. We're here weekdays 9-5 on 0808 800 4040.

    Take care

    Naomi

  • Thank you very much for replying to me, Naomi - it's very much appreciated.  I'll certainly take your advice.  Kind regards.