Advice for lacking clairty post-hysteroscopy

27F. I had a hysterscopy and endometrial biopsies taken under GA yesterday. This was because of my PCOS, for which I have been bleeding non-stop since March 2023 (every single day, heavily). This is not unusual for me, I was on a period for the entirety of my 2 sixth form years but can also go a few years with no bleeding at all - I have very similar patterns since I was diagnosed at 14. When I was in the recovery room and still dazed, the Consultant surgeon came to talk me through what had gone on. He first asked if I wanted to see the photos of the hysteroscopy (I think as I am a doctor myself), which I did, and he explained the presence of inflammation there which was clearly visible. The whole conversation was under a minute long, but there were a few quotes that I am able to remember very clearly despite not being quite with it. These were the following: 

- "This is definitely an abnormal uterus" 

- "There is a lot of inflammation here (pointing to the photos) - this may be explained by the prolonged bleeding you have been experiencing" 

- "We can see what we think are cellular changes" 

- "We have taken biopsies and you may likely need 4 monthly biopsies going forward" 

- "There were no complications of the procedure" 

- "We've booked you in for a paper clinic in 6 weeks time to follow up the results, if you don't hear from us don't worry" 

Except, that I am worried. I feel like I have a lot of unanswered questions but unsure where to start. Unfortunately, my brain wasn't working quickly enough post-GA to be able to know what I wanted and needed to ask for peace of mind. I understand I am likely having a 'cancer scare' but I feel very left in the dark and have 6 weeks ahead of me when I'll likely be overthinking everything. I know this will seem very daft coming from a doctor who works in the NHS (albeit very new, having started F1 in August '24) but could anyone offer me any advice as to whether I should be expecting any additional information prior to the biopsy result? Is this normal, to have been given some unexpected potentially scary information immediately after the procedure with no one else with me to give me a sanity check that it really happened? I would really appreciate any advice or pointers in the direction of anything I could be doing to help slow my mind down a bit!

Thank you :) 

  • Following on from this, I had also forgotten to add in that the Consultant also said "We would have resected it, but because of your age with possible desire to have a family, we didn't do that" (just for full disclosure for what I remember!)

  • Hello SiennaJade and thank you for posting,

    I am sorry to learn that you recently needed to have a hysteroscopy

    It sounds like there was a lot of information to take in straight after the surgery.

    I think that unfortunately, no one can tell you much more until the biopsy results are known.

    It might be worth contacting the consultant's secretary, to find out if there is a possibility of speaking with the consultant to get more clarification about your situation. Or perhaps if there is a nurse specialist available. You could also see whether your GP has had any information from the hospital.

    I hope this helps a little if you would like to speak with one of the nurses on the helpline we are available between 9 am and 5 pm and the freephone number is 0808 800 4040

    Take care,

    Jemma