Cervical cancer

Hi 

had lots of problems over past year hoping to find out more from nurses so just a quick recap 

menapause at 28 

no hrt for 30 years then started 18 months ago 

vaginal atrophy prevented smear tests and all things penetrating 

started bleeding very heavy with hrt and started loosing weight gone from size 20 down to a 10 now 

was put on w2w for bleeding and change in bowel had cameras front and back nothing found but some blood work was quirky and kept changing 

doctor had frank talk with me saying she was convinced I had it but didn’t know where after all checks she put on a watch and wait with monthly check ups 

then had first smear since atrophy and adjustment of hrt so bleeding finally stopped 

had the smear on teusday Friday had an appointment for a colposcopy went along on the teusday and was told there is a large lesion on the cervix and I need to have an anaesthetic to have it removed as it’s too big to be removed in clinic 

had a pre op the following week and have a nurses appointment this Friday and an op on the 10/03  

I was also told that I have high grade hpv and severe dyskaryosis is this likely to be the cancer my doctor is looking for I have other symptoms ie tired weak lathargic and other small things 

I know you can’t say yes or no but I’m so worried I’ve stayed away from google latley as that seems to have me dead last year lol but I am. Concerned any thing you can tell me would be appreciated as I’m going out of my mind with worry everyone I speak to says it seems really quick 

im sorry it’s so long but thanks for reading 

  • Hello and thank you for posting,

    I am sorry to learn of everything you have been through with your health and that you are waiting to have a lesion on your cervix removed.

    As cancer information nurses not involved in your care we cannot say whether or not this is cancer or if this is connected to the symptoms you are experiencing. Only the doctors who will do your surgery will be able to confirm this.

    When you have your appointment with the nurse on Friday do ask them to go through everything with you again. You could ask what they think the lesion is and mention all the concerns you are having. It is possible to have lots of different symptoms that are not linked.

    It can be a stressful and anxious time waiting for surgery and the results and it is a period where people often may feel they have no control.

    I hope you have friends and family you can lean on during this time. If you would like to speak with one of our nurses on the helpline, you would be welcome to give us a call. We are available between 9 am and 5 pm Monday to Friday and the freephone number to call is 0808 800 4040.

    I wish you all the best with your up and coming operation.

    Take care,

    Jemma

  • Hi had my lletz procedure on the 10/03 and today my nhs app says that I have both cin 1 and cin 2 and my case will be discussed on 11/04 at the mdt does this possibly mean I will have to have a hysterectomy or is it more likely to be a watch and wait scenario I’m just so worried most of my aunts and uncles died of cancer I’ve had two scares in the past and frankly the wait is absolutely worrying me more I just need some re assurance please I’m going out of my mind 

  • Hi there and thanks for posting

    I am sorry that you needed to undergo the lletz procedure for abnormal cells and to also hear you have lost some of your relatives to cancer. It is understandable for anyone undergoing tests to feel worried and concerned.

    Please try not to over think what you have read and rather sit tight and wait and see what the colposcopy team come back and tell you.

    Remember that CIN 1,2 and 3 are all pre cancerous cells rather than cancer itself and you have had lletz to remove these. Occasionally more lletz or other treatment is required but it would be very unusual for a hysterectomy to be needed to remove abnormal cells.

    It sounds like you will be discussed in MDT next week so not too much longer now to wait. Try and keep yourself busy and your mind on other things if you can as this can help.

    I hope you know more soon and get some peace of mind about this.

    All the best

    Take care

    Naomi