Should patients be isolated during neutropenia following intensive chemotherapy, e.g. for AML?

I am currently at home after two rounds of intensive chemotherapy for Acute Myeloid Leukaemia (AML) with 5-6 weeks in hospital each time. I am about to be admitted again for a ‘consolidation’ round of HIDAC (high dosage of Cytarabine, twice daily on days 1, 3 and 5) followed by several weeks stay, until my blood counts recover.

On my last stay, I was repeatedly moved between single and multi-occupancy rooms (e.g. four times in ten days) and spent half my time in a room where patients had respiratory infections.

The air conditioning in that room had failed before Christmas and was still not operational when I left the hospital four weeks later! The other patients had visitors all day, every day - some visitors refusing to wear face masks or even wash their hands.

The hospital has warned me to expect similar conditions during my next stay as it does not have enough single rooms to provide isolation for all AML patients. Is this normal/acceptable during periods of severe (or absolute) neutropenia after intensive chemotherapy?

Thanks, Tigger

  • Hello Tigger and thank you for your post,

    I am sorry to hear about your diagnosis of AML and that you will be having consolidation chemotherapy. I can appreciate your concerns about your hospital care.

    I have looked to see what recommendations are made for people undergoing treatment for acute leukaemia. The National Institute of Health and Clinical Excellence (NICE) 2016 guidance for the care of haematology patients recommends that people receiving intensive treatment who have 7 or more days of neutropenia (less or equal to 0.5 neutrophils) should be nursed in a single room with its own bathroom. There should be consideration about installing clean‑air systems in isolation facilities.

    I think this is something you do need to talk about with your specialist team, in particular your Clinical Nurse Specialist.

    You may also find posting in another area on Cancer Chat allows other people to see your post and share their experience.


    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care

    Caroline